This month our co-hosts @Stroketattler coordinated our second successful, interactive (and fun) Tweetchat event on self-management.
We warmly thank our global supporters, posters and ‘lurkers’ (who we hope may get involved by interacting next time!)
I thought it might be helpful if you had a short summary of the key themes that seemed to emerge from our conversation according to our Symplur transcript?
So we asked …
T1. What do you think of self-management after stroke?
And you said,
‘As a wife we need to look at stroke self-management ecologically. Onus cannot be only on the survivor.’
‘SM (self management) huge priority but we need a culture change towards enablement and flexibility to support implantation in practice.’
‘It is equally important for both health professions and survivors to understand the importance of self-management in recovery.’
‘Self management is relevant. Likely why some survivors do very well/others deteriorate after discharge.’
‘Those with SM skills do well, those without social networks, SES, Education have difficulty self managing.’
‘Is this to do with widespread and early clinical pessimism after stroke & use of word ‘plateau’?
‘The word plateau is a self-fulfilling prophecy isn’t it?’
T2. How relevant is self-management after stroke? Do you think stroke survivors can manage stroke by themselves? T3. What preparation and support do stroke survivors need?
‘I think engagement with FRIENDS not just family, who may know patient better.’
‘We can all learn and share from each other.’
‘We need motivated family and friends and the programme individualised.’
‘It is equally important for both health professionals and survivors to understand the importance of self-management.’
‘I like the phrase #guideddiscovery to describe the power of #peersupport amd #selfmanagement and #strokerecovery.’
‘We need a strengths-based approach to stroke recovery.’
‘We need strenths-based approach, mentoring and teaching stroke survivors and partners to mentor.’
T4. What are the barriers to self –management after stroke?
‘…The knowledge of health and community systems – navigation #strokerecovery.’
‘…Another barrier is lack of confidence or self-esteem.’
‘We need to do a psychological, cognitive and emotional assessment before developing self-management programme.’
‘Current problem is silos between Health and community (social care UK)’
‘ Lack of awareness, physical symptoms, transportation issues, and cost, lack of insurance benefits.’
‘Early discharge from hospital – less opportunity to mobilize and get SM knowledge.’
‘Emotional – anxiety/depression, relationship, environmental, ethnicity barriers.’
‘Time required for acceptance and adjusting to new life circumstances as well as #strokerecovery.’
‘Our challenge is sharing our learning and having collective voice – but we can overcome this.’
I very informative hour was spent by all. We hope the larger stroke charities will learn and join in on future Tweetchats and our views start to INFLUENCE #strokerecovery.
POWER TO US!
I Am Still The Same -Self help stroke recovery tool