Next tweetchat on #aphasia recovery as part of our #strokerecovery series at 8pm BST 12th May!!! #hcsmca

(Time zone converter).

Aphasia refers to difficulties in the ability to understand or express oneself through speech.

Language allows us to express our thoughts, desires, intentions, motivations, to ask questions, to give commands, to understand what people say, to read, to write, to listen & to speak.

When aphasia strikes a persons ability to use ordinary language is often difficult, and someone may not be able to communicate their daily activities or may feel isolated or may not be able to interact socially.

Some aphasic people may have receptive aphasia ie comprehension problems such as not knowing people are speaking to them, or realising if someone is angry or merely asking a question or understanding complete thoughts and individual words.

Other people have expressive aphasia where some people have difficulty forming complete sentences or leave simple words like ‘the’ or ‘is’ out or often say things that don’t resemble a sentence.

Famously, the critically acclaimed film, The Possibilities are Endless about singer  Edwyn Collins‘ recovery from a stroke, which resulted in aphasia – a communication disability which not many people know about. The website for their campaign is here:http://www.thepossibilities.co.uk/campaign/about.html.

The film producers are reaching out with a series of FREE art therapy workshops, with the first one being this Saturday 18th April at Hampstead Heath’s ‘Hive’ venue.  

So, for some even less famous than Edwyn, this is a huge residual difficulty following a stroke and explains why it will be our next #strokerecovery tweetchat at 8pm BST on 12th May 2015.

Our questions will be:

T1.What percentage of stroke patients have understanding & expression issues? Is it more common with bleed or blockage? Why?

T2. What are the evidence-based treatments for aphasia recovery?  How long is aphasia recovery typically? 

T3. What evidence-based treatments are available for expressive or receptive aphasia?

T4. Do patients get sufficient community support and therapy once they leave hospital. If not, why?

T5. What are the future developments or technology in aphasia recovery?

I hope to see you soon!! Don’t forget May is official stroke month!

 

NEW EBOOK! 

 

I Am Still The Same -Self help stroke recovery toolInternationally published author ‘Running Free’ (Amazon) .  Speaker –   Founder Fighting Strokes Kate’s story in 2 minutes

 

 

Really emotional after #stroke? 8 tips for #strokerecovery

 


So you are banned from seeing your daughter act in a serious drama performance at school in case you laugh loudly or cry, when actually pre-stroke you would have simply just smiled or looked sad. 


  

Or you laugh at funerals or have extreme emotional reactions in the cinema. (Which are also incredibly embarrassing for your kids) and not least deeply distressing and frustrating for you. 

Apparantly, I have an odd gurning-type-expression when I try to hold back the floods of tears at, for example, the French singing/talking dog on Britain’s Got Talent recently. 


 

Sound familiar after #stroke? 

Changes in your emotions or behaviour can be caused by the physical damage to your brain or from the effects of coping with the trauma and its aftermath. 


These tips may help you deal with the emotional aspects of your #strokerecovery:

• Don’t feel guilty!  It’s not your fault.

• Talk to someone. I personally find making light of the situation helps me to cope with my friends and family so they understand.

• Get support! This may be online or in traditional support groups.

• Know when to ask for help. 

• Exercise. I walk my fabulous cocker poo and go the the gym every day, like an extension to the routine of brushing your teeth.

• Find time to relax. I’m addicted to Spotify, the Podcasts app and Netflix – House of Cards, Breaking Bad, Damages…. 

• Give yourself credit.  I know I have very high standards but reflect on all your achievements since your life changed after your stroke. Mistakes are normal and perfectly ok, you generally learn from them. 

• Tell people how you’d like them to treat you if you become emotional.The more people tell me to stop laughing or crying in appropriately I get worse! I think, after months of explaining to my family, they finally get that and back off from me. 


Perhaps this us useful?


NEW EBOOK! 


I Am Still The Same -Self help stroke recovery toolInternationally published author ‘Running Free’ (Amazon) .  Speaker –   Founder Fighting Strokes Kate’s story in 2 minutes